The Perfect World

Written by Kathleen Carney at age thirteen.  She is the sister of Neil Carney, who was then five years old and has autism. Have you ever worked so hard for something and finally got it? That’s what happened to Neil and my mom. Neil is my 5-year-old autistic...

Penny Power

By Tavrick’s mother, Anita Raghavan Sing to the tune of A Few of My Favorite Things. “Physical therapy, musical therapy, occupational therapy, and speech therapy, play groups and Therapeutic Case Managers – these are a few of our favorite things baseball and...

Parent-to-Parent: Our Family Story

As he takes my hand and pulls me toward the swing, I see the hunger in his blue-green eyes. I feel my heart melt and my world change. My heart is full yet breaking at the same moment. He is communicating with me, yet we are the only ones who seem to...

No Holding Back

By Richard and Marcia Jeans Fifteen years ago my husband and I faced one of the most difficult moments in our lives when the doctors told us that our daughter, Alysha, was blind. She was diagnosed with Leber’s Congenital Amaurosis. We grieved for weeks, but with...

Mito What?

By Gina Rader, Wichita In 2007, after 18 months of cross country travel, numerous tests, muscle biopsies and a lot of waiting, we finally received a diagnosis of mitochondria disease for our 3 year old son Grant. All the while, enduring speech, physical and...